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Video: Public Awareness & Understanding

About this clip: Public Awareness and Understanding. Six people talk about how they have come to terms with living with a genetic condition and how this has affected their lives. They also discuss what, if any, information was available at the time of their diagnosis and how that information has improved since.

The clip may take a couple of minutes to begin streaming.

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About the Video Clip

11. Do you think you ought to know more about genetic diseases / disorders?

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12. How would you like to be better informed and by whom?

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Internet

Other (please specify)

13. What kind of information should be made available?

Scientific e.g more about the science behind the disorder

Impact on a person / family eg , how the condition impacts on peoples lives

Chance of it effecting other family members eg understanding more about hereditary disorders and when & why they occur

Services / Support / Treatment eg what is available, where and to whom.

Support groups eg Where to find them and how to contact them.

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14. When would you like to be informed about genetic diseases / disorders?

In childhood
When you or your partner become pregnant
After your child is born
When you ask
Only if you are at risk
Other (please specify)

15. Who would you like to give you this information?

1st 2nd 3rd 4th 5th N/A
GP/Family doctor
Hospital specialist
Social worker
Friends
Family

16. If Other (please specify)

17. Where would you most likely look for information if you were diagnosed with a genetic condition?

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