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Our members

Genetic Alliance UK is a national alliance of organisations with a membership of over 200 charities which support children, families and individuals affected by genetic disorders. Search our members below to find support for your condition. If you cannot find an appropriate organisation have a look at our finding support and information pages.

If you are a patient group and want to see your organisation on this page you can find out about membership or contact us.

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Save Babies Through Screening Foundation UK

Save Babies UK works to advance the health and wellbeing of children suffering from Krabbe disease and other Leukodystrophies in the UK.

Scleroderma & Raynaud's UK

Scleroderma & Raynaud's UK (SRUK) is the only UK Charity dedicated to improving the lives of people with Scleroderma and Raynaud's.

Shwachman-Diamond UK

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