“The excellent work that you do is so important. As a small non-profit we would not be able to gain the knowledge that you provide on our own. Thank you so much!!!”
Stacy Corke, Naitbabies, 2012
“Well done for all your hard work. I have enjoyed working with you and have always found your team very approachable and friendly.”
Fiona Copeland, PCD Family Support Group, 2012
“More of the same please! You are brilliant!”
Beverly Searle, Unique, 2012
Talking about our project SWAN UK: “Joining SWAN UK has made a massive difference to my life. I have some great friends and always know where to turn to if I need some help”
SWAN UK member 2012
“Can’t thank you enough for being a great voice for us all!”
Carlee Gilbert, ChILD Lung Foundation, 2011
On Rare Disease UK, an initiative of Genetic Alliance UK: “Thank you for all you are doing. I think great progress has been made and we are moving closer to securing a better experience for all people with a rare disease.” Former carer for patient with a rare disease
“I am really grateful for the support given to me by Genetic Alliance UK. On behalf of the entire cavernoma community, I know that these guidelines will be a very useful starting point for research in this area.” Ian Stuart, Cavernoma Alliance UK
Helping those with genetic conditions
Genetic Alliance UK is the national charity of over 150 patient organisations supporting all those affected by genetic conditions.
Our aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.
You can find out more information on our latest events page
Our mission has three main elements:
We seek to raise awareness of genetic conditions and improve the quality of services and information available to patients and families.
We actively campaign on behalf of those with genetic conditions on issues of policy and practice to influence governments, policy makers, industry and care providers such as the National Health Service.
We provide a united voice for all those affected by genetic conditions, enabling us to work together towards a common goal of making life better for patients and families at risk.
Alexion Pharma UK
Babble IT Systems Limited
Bird and Bird
The Big Lottery Fund
Chigwell & Hainault Synagogue
Department of Health (Third Sector Investment Programme)
The Diana, Princess of Wales Memorial Fund
The European Commission (FP6)
The European Commission (FP7)
The Hospital Saturday Fund Charitable Trust
The Hugh Fraser Foundation
Lawford Davies Denoon
Medical Research Council (MRC)
National Institute for Health Research (NIHR)
The Scottish Government
The Violet and Milo Cripps Charitable Trust
Wales Gene Park
The Wellcome Trust