Living with a Genetic Condition

Living with a genetic condition or being a family member, carer or friend of someone living with a genetic condition can be challenging. This section contains information about finding information about a rare or genetic condition and finding the support you need. We also have information one of our most common queries: access to insurance. If you can't find the information you have been looking for please contact us.

Finding support for a rare or genetic condition

Finding support for a rare or genetic condition

Finding information about a rare or genetic condition

Finding information about a rare or genetic condition

Insurance and genetic conditions

Accessing appropriate insurance is a significant problem for many people affected by genetic conditi…

Insurance, family history and genetic testing

What insurance companies can ask, and what you need to tell them when applying for insurance can see…

Insurance, privacy and the Concordat and Moratorium

What information you do, or do not, need to share with an insurance company is regulated by a volunt…

Life Insurance

Life insurance policies are designed to provide financial security for dependants of a policy holder…

What if I have been refused insurance?

One of the most common questions we get asked by patients is 'why have I been rejected'. This can be…

Travel Insurance

Travel insurance is vital and should be considered an essential part of your trip. There are many di…

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