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 Fundraising Officer

About us

SWAN UK (syndromes without a name) is part of the charity Genetic Alliance UK, offering direct support and information to families of children with undiagnosed genetic conditions. We help families at home, in hospital, through events, such as family fundays and by educating professionals. We are the only support in the UK available for this community of families, our cause is unique and we are making a real positive difference. Around 6,000 children are born every year in the UK with a syndrome without a name, and our ambition is to ensure every one of these children and their families has the support they need, when they need it. SWAN UK has huge potential to help so many more children and their families.

SWAN UK has grown significantly over the last five years, building a strong brand identity, acquiring corporate partners and developing community and events funding streams. There remains huge potential for growth and we have ambitious plans for the future.

Genetic Alliance UK is the national charity of 180 patient groups supporting all those affected by genetic conditions. Our aim is to improve the lives of patients and families by ensuring that high quality healthcare is available to all who need it.

About the role

We are looking for an outgoing, enthusiastic and can-do fundraiser to join our small, friendly and bustling team to ensure we continue to grow and help us make a difference to our families. Focusing on developing and delivering SWAN UK community and events income stream, and assisting in developing our corporate fundraising, we need someone who has the confidence and skills to communicate with potential and previous fundraisers to attain and retain their support in raising vital monies for us.

This is an exciting role for someone who wants to establish or continue their career in charity fundraising, developing cause-based communications (using social media and other channels), working directly with SWAN UK families on fundraising (a DBS check will be required), leading on fundraising initiatives such as our annual ‘Undiagnosed Children’s Day,’ inputting into strategy and helping to further develop our brand. The successful candidate will gain significant experience in fundraising and will also get to see the benefits of SWAN UK’s work in action with its beneficiaries.

The role will focus on SWAN UK fundraising, and there will be opportunities to be involved in developing and delivering fundraising activities for other areas of Genetic Alliance UK’s work. This includes helping to develop our corporate fundraising activities, identifying potential target companies and helping to write pitches and submitting applications. This role will be giving the successful candidate a fantastic opportunity to develop further fundraising experience within a small but thriving charity.

If you think that you could rise to this challenge and would enjoy doing so, then read on to find out more about the responsibilities, specification and competencies required.

Job title:   Fundraising Officer

Employer:  Genetic Alliance UK, responsible to Development Director and Development Manager.

Based at:   Unit 4D, Leroy House, 436 Essex Road, London N1 3QP.

Term: Fixed-term 12 month contract, with potential to extend, 3 days / 21 hours a week (0.6fte).

Salary: Up to £15,000 (pro-rata of £25,000 full-time equivalent) with employer’s pension contribution.

Job Purpose: Coordinating and delivering SWAN UK events and community fundraising, with the potential to develop Genetic Alliance UK’s fundraising activities.

How to apply

  • Download the application pack for more information about this role.
  • Please apply by email to: .
  • Your application should include your cv and a cover letter explaining why you would like this job and why you are a suitable candidate. Both documents must be attachments to your email and saved as PDF or Microsoft Word format. Please include your name on the document titles eg. “JohnSmithcv.pdf” and “JohnSmithcoverletter.pdf”.
  • The closing date for applications for this role is Friday 27 November 2015, 5pm.

Development Manager (fundraising and income generation)

This is a full time post based in our London office, initially for a fixed 12 month term which is extendable, salary up to £35,000 per annum.

There are over 6,000 different genetic conditions; four out of every 100 children born in the UK have a genetic condition and 80% of genetic conditions are rare.

Genetic Alliance UK is the national charity of 180 patient groups supporting all those affected by genetic conditions.Our aim is to improve the lives of patients and families by ensuring that high quality healthcare is available to all who need it. For children, adults and families affected by various genetic conditions, many of the problems and barriers they face are the same, so we work to ensure patients get a diagnosis, access to effective therapies, a cure and prevention if possible. We actively support research and innovation across the field of genetic medicine and our campaigns and projects add evidence and knowledge to improve health service provision, research and support for families. We provide a strong and clear voice to influence decisions that directly affect peoples’ health and lives.

We are aiming to increase our impact as a charity - helping more people and bringing the patient voice to more important debates and discussions. We are looking for someone to join the team who can help us grow our income so that we can continue to make a difference for everyone with a genetic condition.

About the role

Working closely with colleagues from across the charity, you will be translating ideas and plans for projects and initiatives into convincing funding proposals and pitches. You will be an effective communicator, able to make a clear and persuasive case for support - both on paper when submitting written applications and in person when presenting pitches. You will have a proven record of success in securing funding for projects and activities and will be confident in presenting innovative proposals that tackle complex subjects.

We have a broad range of funders, including charitable trusts and foundations, statutory (e.g. Big Lottery) and corporate organisations. You will have the opportunity of working with all of these, and we hope to broaden this portfolio. This role is a fantastic opportunity to consolidate your experience of successful fundraising and income generation, while having the opportunity to get involved in developing and delivering a fundraising strategy and work programme of a growing, dynamic and well-respected charity.

How to apply

  • Download the application pack to find out more about this role.
  • Submit your application to Mrs Buddug Cope, Director of Development by email:
  • Your application should include your CV and a cover letter explaining why you would like this job and why you are a suitable candidate. Both of these documents should be attachments to your email and saved as PDF or Microsoft Word format.
  • Please include your name on the document titles e.g. “JohnSmithcv.pdf” and “JohnSmithcoverletter.pdf”
  • The closing date for applications for this role is Friday 20th November 2015 at 5pm.
  • Interviews will be held on Wednesday 25th of November 2015, during office hours, at our office in London (N1 3QP).

Internship vacancies

There are currently no internship vacancies. 

Internships at Genetic Alliance UK

We are a small, expert and enthusiastic team. Our interns become a part of the team and have the opportunity to get involved in all aspects of the work we do to provide support for, and campaign alongside all those affected by genetic conditions. We always try to ensure that our interns have the best possible experience with us.

We offer a variety of internships. You might lead on your own project, such as organising an event or researching and producing a report, or gain experience of working alongside colleagues on a number of different projects at once. This could involve engaging with our patient group membership, developing policy positions, delivering workshops and focus groups or producing content for our website and social media platforms.

Our aim is to ensure that you have a valuable learning experience and that the skills and expertise you gain whilst working at Genetic Alliance UK will enhance your CV and enable you to progress on your chosen career path. We also like to learn from our interns, and welcome new ideas on how we can improve the way we work and particularly, how we can make sure our interns get the most out of the time they spend with us.

For all our interns, we promise to:

  • Give you interesting work that we would otherwise be happy to do ourselves;
  • Provide a clear work plan whilst giving you the autonomy to shape your own role;
  • Ensure that you have as much support and guidance as you need whilst you are with us;
  • Give you the opportunity to gain experience in the skills areas you are most keen to develop;
  • Work the hours and the days that are most convenient for you.

While we do our best to secure funds to support our interns while they work with us, this is not always possible. We will always cover our interns’ travel and lunch costs though, and do not permit our unpaid interns to work more than three days a week.

You can see what our previous interns have to say about their experience with us below. We use feedback from our interns to improve their experience.


Feedback from previous interns


I really enjoyed working with the policy team of Genetic Alliance UK. I had little experience in policy and working with the policy team gave me a good overview of the different tasks they have to complete. I had the chance to draft consultation responses and statements, and help at workshops and conferences. The team was very friendly and supportive and think the internship provides a good insight into the workings of policy.


My time as an intern at Genetic Alliance UK was a great overall experience. I had the opportunity to work on a variety of tasks, from communicating with our members to maintaining our online presence. On top of this, my favourite experience was attending and helping to organise our parliamentary receptions across the UK in recognition of Rare Disease Day 2014. This was a great chance to meet with some of our members and learn more about the benefits of our work. The atmosphere in the office was incredibly friendly and everyone in the team was very welcoming. I would highly recommend it to anyone interested in working there!


It was a very enriching experience overall and I learnt a lot. I was directly involved in recruiting companies and community groups for the event. It was the first time I worked in Corporate Fundraising and the internship gave me a good insight of this area of fundraising. I always felt encouraged to participate and the other team members would take into account my suggestions and ask for my opinion. I loved the variety in the role and the working environment was excellent very friendly and helpful.


My experience was really positive; everyone was really supportive, friendly and helpful. The pink hoody was also nice! I enjoyed being part of the Genetic Alliance UK team.


I really enjoyed my internship at Genetic Alliance UK. I had never done an internship abroad before, so I was really excited. In university, all the data you need is served on a platter. At Genetic Alliance UK I saw how it works in reality: sometimes a bit difficult but also a huge challenge. Besides that I liked that the atmosphere was really informal, that way it was easy to talk to someone or to ask and get in touch with each other. I didn't feel boundaries and that causes to really get to know my lovely colleagues). It was amazing to see how the team works, everybody was so tailored to each other and worked together really well!