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Policy Officer

Job Purpose: To work with members of the Policy Team, driving Genetic Alliance UK’s policy work.

Policy work is at the heart of Genetic Alliance UK's activity: all of our work either begins or ends with a policy issue. The Policy Officer will work closely with the Director of Policy to identify and develop policy work for Genetic Alliance UK.

The team works on a wide range of topics to ensure that the voice of our member groups contributes to the development of policy that may affect them. Our policy work includes: NHS commissioning of specialised services; governance of biomedical research; regulation and health technology appraisal of new and innovative treatments; genome sequencing in research and in the health service; reproductive choice and innovative artificial reproduction technology, and much more. We operate at the European, UK and devolved nation level.  

Alongside our success in driving the development and implementation of the UK Rare Disease Strategy through our Rare Disease UK campaign, we are looking forward to performing more policy work to support families with children with undiagnosed conditions as part of our SWAN UK initiative.  

Each year Genetic Alliance UK produces a number of Patient Charters, which deliver a highly detailed overview of a policy area alongside recommendations based on the view of our members. The successful applicant will deliver at least two of these in their first year in the post. Please view these here and here.

Based at: Unit 4D, Leroy House, 436 Essex Road, London N1 3QP
Term: Full time (35 hours a week) for 12 months, with the facility to extend. This post is subject to a 12 week probation period. Salary: £26,000 per annum

How to apply: Please apply by email to Your application should include your CV and a cover letter explaining why you would like this job and why you are a suitable candidate. Both of these should be attachments to your email.

Closing date: Friday 12th June at 9am
Interviews to be held on Thursday 18th June at our office in London.



Internship vacancies

We do not currently have any internship vacancies. Check back soon! 


Internships at Genetic Alliance UK

We are a small, expert and enthusiastic team. Our interns become a part of the team and have the opportunity to get involved in all aspects of the work we do to provide support for, and campaign alongside all those affected by genetic conditions. We always try to ensure that our interns have the best possible experience with us.

We offer a variety of internships. You might lead on your own project, such as organising an event or researching and producing a report, or gain experience of working alongside colleagues on a number of different projects at once. This could involve engaging with our patient group membership, developing policy positions, delivering workshops and focus groups or producing content for our website and social media platforms.

Our aim is to ensure that you have a valuable learning experience and that the skills and expertise you gain whilst working at Genetic Alliance UK will enhance your CV and enable you to progress on your chosen career path. We also like to learn from our interns, and welcome new ideas on how we can improve the way we work and particularly, how we can make sure our interns get the most out of the time they spend with us.

For all our interns, we promise to:

  • Give you interesting work that we would otherwise be happy to do ourselves;
  • Provide a clear work plan whilst giving you the autonomy to shape your own role;
  • Ensure that you have as much support and guidance as you need whilst you are with us;
  • Give you the opportunity to gain experience in the skills areas you are most keen to develop;
  • Work the hours and the days that are most convenient for you.

While we do our best to secure funds to support our interns while they work with us, this is not always possible. We will always cover our interns’ travel and lunch costs though, and do not permit our unpaid interns to work more than three days a week.

You can see what our previous interns have to say about their experience with us below. We use feedback from our interns to improve their experience.

We don't currently have any internship opportunities.

Feedback from previous interns


I really enjoyed working with the policy team of Genetic Alliance UK. I had little experience in policy and working with the policy team gave me a good overview of the different tasks they have to complete. I had the chance to draft consultation responses and statements, and help at workshops and conferences. The team was very friendly and supportive and think the internship provides a good insight into the workings of policy.


My time as an intern at Genetic Alliance UK was a great overall experience. I had the opportunity to work on a variety of tasks, from communicating with our members to maintaining our online presence. On top of this, my favourite experience was attending and helping to organise our parliamentary receptions across the UK in recognition of Rare Disease Day 2014. This was a great chance to meet with some of our members and learn more about the benefits of our work. The atmosphere in the office was incredibly friendly and everyone in the team was very welcoming. I would highly recommend it to anyone interested in working there!


It was a very enriching experience overall and I learnt a lot. I was directly involved in recruiting companies and community groups for the event. It was the first time I worked in Corporate Fundraising and the internship gave me a good insight of this area of fundraising. I always felt encouraged to participate and the other team members would take into account my suggestions and ask for my opinion. I loved the variety in the role and the working environment was excellent very friendly and helpful.


My experience was really positive; everyone was really supportive, friendly and helpful. The pink hoody was also nice! I enjoyed being part of the Genetic Alliance UK team.


I really enjoyed my internship at Genetic Alliance UK. I had never done an internship abroad before, so I was really excited. In university, all the data you need is served on a platter. At Genetic Alliance UK I saw how it works in reality: sometimes a bit difficult but also a huge challenge. Besides that I liked that the atmosphere was really informal, that way it was easy to talk to someone or to ask and get in touch with each other. I didn't feel boundaries and that causes to really get to know my lovely colleagues). It was amazing to see how the team works, everybody was so tailored to each other and worked together really well!