Latest Events
Find out what upcoming events Genetic Alliance UK is involved in and what other upcoming external events you can get involved in. We have details of Genetic Alliance UK and Rare Disease UK events, External events and upcoming committees and focus groups.
2012 Genetic Alliance UK and Rare Disease UK Events
Genetic Alliance UK annual conference and AGM 2012
This year's annual conference and AGM will be held on 2nd July 2012 at Charles Darwin House, 12 Roger Street, London WC1N 2JU. All members are invited to join us for what promises to be an exciting and interesting day. The booking form is available here and the programme for the day is available here. If you have any questions about the event please contact Julian on
We look forward to seeing you there!
Genetic Alliance UK Membership survey 2012
Thank you to all of you who completed the membership survey. Your feedback has been invaluable and we have started to implement it already. Following feedback from the survey we have made this year's conference and AGM free to members. See above for the programme and booking form.
2011 Genetic Alliance UK and Rare Disease UK Events
Genetic Alliance UK AGM- 1st November 2011
We held our AGM on Tuesday 1st November. At the event we released our Annual Review of 2010/2011 and also launched the Facilitating Networks project.
Our speakers' presentations from the day are here:
What is the future for commissioned specialised services in the NHS?
Kate Caston - Transitional programme lead for specialised services, NHS Commissioning Board Implementation, Department of Health (this presentation also includes information about the NHS reorganisation and the latest edition of the NHS Commissioning Board update so the file is quite large at 4mb and may take a while to download)
Changes to Public Health in the NHS, how will it work in the future?
Dr Mark Kroese - UK Genetic Testing Network Public Health Advisor
The launch of Facilitating Networks
Buddug Cope - Genetic Alliance UK
Dr Ian Stuart - Cavernoma Alliance UK
Colin Stone - Costello Syndrome Support Group (awaiting permission)
Genetic Alliance UK's activities during the year
Alastair Kent - Genetic Alliance UK