Latest Events

Find out what upcoming events Genetic Alliance UK is involved in and what other upcoming external events you can get involved in. We have details of Genetic Alliance UK and Rare Disease UK events, External events and upcoming committees and focus groups.

Genetic Alliance UK 2016 events

Genome Seq Week: 7th March - 11th March, 2016

When the first person had their entire DNA sequenced as part of the Human Genome Project back in the 1990s, it took over 12 years. Today it is possible to have your entire genome sequenced in just a matter of weeks.

Genome sequencing is a technique that reads along DNA to determine the order of every base pair, letter by letter. A new method has been developed which means it is faster and cheaper to do this, and as a result has the potential to dramatically change the way that conditions may be diagnosed and treating many conditions, including cancer.

What can genome sequencing tell us about how a cancer developed? How can it be used to make decisions about treatment? What are researchers doing right now that could improve cancer treatment in the future?Do you want to know more? Come along to one of our events in March, as Genome Seq Week explores cancer genetics, genome sequencing and what it means for the future of cancer care.

Join us at the following events!

Monday 7th March 2pm:

We're holding a Tweet chat! We'll be joined by geneticist Dr Shane McKee, head of patient group BRCA Umbrella, and previously a patient herself, Caroline Presho, and and Bloodwise’s Head of Research Matt Kaiser.

2pm - just follow @GeneticAll_UKWednesday

Wednesday 9th March 1pm:

We're collaborating with the Wellcome Trust to curate their March Packed Lunch. Head to the Wellcome Collection for 1pm to hear Dr Charlotte Pawlyn discuss her work understanding the genetics of myeloma, and hear how her team are learning how personalised treatments can help treat myeloma pateints faster and more successfully.

1 - 2 pm, Wellcome Collection, Euston Road, London

Thursday 10th March, 7pm:

Spend an evening with our guests, Dr Katie Snape and Dr Clare Turnbull as they talk about how cancer genetics research (Dr Turnbull) can be applied to the clinic (Dr Katie Snape). Dr Snape is a consultant in clinical cancer genetics at St George's Hospital, London, while Dr Turnbull is a senior researcher at the Institute of Cancer Research, who works to understand the genetics underpinning cancer development. Together, they'll be expalining how the work of researchers in the lab can impact on the work of doctors in the clinic, and how this can save lives.

7pm - 10 pm Venue to be confirmed - check back here for more information!

 

Our project

My Cancer, My DNA is a project we are running through January and February, aiming to gather from cancer patients and their families, their views and expereinces of how whole genome sequencing could best be used in cancer prediction, diagnosis, and treatment. Genome sequencing offers great potential for the effective diagnosis and management of many conditions, and we think those who are likely to use and benfit from this technology should have a say in how it is used and delivered. the views of patients and families are central to the uptake of genome sequencing in the NHS.

Genetic Alliance UK has been running the My Cancer, My DNA project through January and February. We have been discussing with cancer patients and their families their views and experiences of how whole genome sequencing could best be used in cancer prediction, diagnosis, and treatment.

Genome sequencing offers great potential for the effective diagnosis and management of many conditions, and we think those who are likely to use and benefit from this technology should have a say in how it is used and delivered. The views of patients and families are central to the uptake of genome sequencing in the NHS, and we'll collate these views to produce a ‘Patient and Family Charter’; a written document that will outline a series of recommendations from patients on how genome sequencing can be best used in a healthcare setting. The Charter will be given directly to the key people and groups responsible for delivering genomic sequencing in the UK’s healthcare system.

We want to take this opportunity to share our findings and discuss them with you. My Cancer, My DNA is funded by the National Institute for Health Research (NIHR) BiomedicalResearch Centre at The Royal Marsden NHS Foundation Trust and The Institute of Cancer Research.

We are pleased to be working with Cancer52, Bloodwise, Breast Cancer Now, and Cancer Research UK on this project.

Events archive

If you would like to see any details of or talks from our past events, please visit our events archive.