Latest Events

Find out what upcoming events Genetic Alliance UK is involved in and what other upcoming external events you can get involved in. We have details of Genetic Alliance UK and Rare Disease UK events, External events and upcoming committees and focus groups.

Genetic Alliance UK 2016 events

Medical evidence: Be part of The Academy of Medical Sciences’ latest research project

The Academy of Medical Sciences is carrying out research to explore how we can all best use evidence to judge the benefits and risks of medicines. A crucial part of this is hearing from patients, families and carers who have regular contact with the health service and are accustomed to talking with healthcare practitioners about the benefits and risks of medicine(s).

The results of the research will inform policy conversations and be vital for increasing wider understanding across the medical profession and academia of how patients view this important issue.

They are therefore inviting patients and family members in a caring role to take part in two workshops, run by the independent research agency Ipsos MORI.

  • 9.45am to 4pm, Saturday 4 June 2016 at Doubletree Hilton Leeds, Granary Wharf, 2 Wharf Approach, Leeds LS1 4BR
  • 6.15 to 9.30pm, Wednesday 8 June 2016 at Doubletree Hilton Leeds, Granary Wharf, 2 Wharf Approach, Leeds LS1 4BR

There will be regular breaks and refreshments at both events. Participants will be given £80 as a thank you for taking part in the first event and £60 for taking part in the second. Travel costs will also be reimbursed*.

If you would like to take part or simply want more information about the research please contact Naomi Boal from Ipsos Mori.

 

* Travel costs can include: taxis to and from the workshop, parking costs during the workshop, second class train fares, bus tickets and 40p/mile for petrol.

 

Events archive

If you would like to see any details of or talks from our past events, please visit our events archive.