Latest news from genetic alliance uk

Find out what is happening in the world of genetics including: New genetic researches, Genetic conferences, Supporting aid activities, The latest genetic press releases and more

You can also get the latest genetic news at our live Google news page > Latest News on Genetics

International Genetic Alliance (IGA) Declaration on Genetics and Congenital Abnormalities, made in October 2009

GIG Members Survey 2009 - Thanks to all GIG members for responding to our survey and taking the time to speak to us about our work and how we can improve and extend our services.

New patient leaflets on fetal abnormalities produced by the NHS Screening Programme.  

Cord Blood Leaflet - a patient guide to cord blood banking in the UK with useful tips on issues to consider and questions ask.

Over the Counter Genetic Susceptibility Testing - new patient leaflet from GIG to help consumers make informed decisions about direct to the consumer health tests.

Information German Leaflets added to GIG website at http://www.geneticalliance.org.uk/multilingual/german.htm on Clinical Trials and Biobanks.

 The Medical Research Council has produced a report following the 12th of January workshop held on Patient Reasearch Outcomes Measures (PROMs): Identifying UK Research Priorities. The report is available to download on the MRC website. For more information on PROMs please also visit the MRC website.

 The Genetic Interest Group and Rare Disease UK are proud to announce that thanks to the efforts of its members, Early Day Motion 914 - which recognises and supports the work of Rare Disease UK has secured over 100 signatures. Please visit the Rare Disease UK website for more information.

 GENETIC INTEREST GROUP - Now on Facebook!

GIG in Scotland have produced a new leaflet, Your Genes, Your Experiences.  How can patients living in Scotland get more involved in the work of GIG. For more information have a look at the leaflet or contact Claire Cotterall on

GIG Wins an IMPACT AWARD.  One of only 10 charities to do so out of over 400 who entered.  This award recognises small to medium sized charities for the work they carry out.  View the GIG Impact Award Video 

GIG writes to MPs: keep current abortion time limit
Most genetic conditions are only apparent at the 20 week scan
Time limit reduction could lead to increase abortions
Families will be forced into a more painful decision

Download GIG's three cartoon leaflets on HFE Bill:
Human Admixed Embyos Leaflet
PGD Leaflet
Saviour Sibling Leaflet
Here the updated information on the HFE Second Reading (12th May)

GIG & AMRC Letter to all MPs
GIG and the Association of Medical Research Charities (AMRC) sent a letter to all MPs asking them to support the Human Fertilisation and Embryology Bill that is due to enter the House of Commons soon. A briefing paper was also attached.