Latest News Articles
Find out what is happening in the world of genetics including: New genetic research, genetic conferences, supporting aid activities, the latest genetic press releases and more...
13/12/11
Genetic Alliance UK and SWAN are on ITV
Genetic Alliance UK and SWAN are on ITV today. SWAN families will be making appearances on Daybreak and ITV regional and national news throughout the day. The families will be talking about what life is like for families who have a child with an undiagnosed condition. To find out more about SWAN or to become a member please see the SWAN UK page
To see us SWAN on Daybreak follow this link
09/11/11
Fetal Anomaly Screening Programme consultation released
The Fetal Anomaly Screening Programme (FASP) has released a consultation on the T13 and T18 screening programmes. The documents are here:
Consultation flyer
The consultation- available on our website or the FASP website
The feedback form
02/11/11
Genetic Alliance UK Annual Review for 2010/2011 released
Yesterday, at our AGM, we released our Annual Review for the financial year of April 2010 - April 2011. It is available to download here.
01/11/11
New Trustees elected
Today we elected 3 new trustees from our member groups to sit on our board of trustees. Sally George from Antenatal Results and Choices, Louise Jones from Cancer Research UK and Dr Mary Petrou from the UK Thalassaemia Society are now trustees. To see a full list of our board please follow this link.
29/06/11
Reply in the Lancet concerning using animals in Medical Research
Today, Genetic Alliance UK and nine other organisations published a response in the Lancet in support of the use of animals in Medical Research. The response criticises the original article for claiming an overreliance on animal testing in research when in reality, animal testing accounts for a minority of testing and is tightly regulated. You can read our response here.
01/02/11
New patient advice website for clinical trials
Genetic Alliance UK's Director, Alastair Kent, has been working with Roche to create a new website to give a patient's view of clinical trials. The website contains patient videos and advice for those thinking about the benefits and risks of being involved in these trials. It's definitely worth a look!
31/01/11
Genetic Alliance UK's clarification of our position on the NHS reforms
This letter clarifies our position on the NHS reforms.
11/01/11
Academy of Medical Sciences publishes a review of UK research governance
Genetic Alliance UK applauds the new report "A new pathway for the regulation and governance of health research" as it recognises the lengthy research regulation systems currently in place in the UK. For the full story click here and for the full report click here.
11/01/11
Results of the Genetic Alliance UK member survey
We would like to thank all of our members who took part in our 2010 survey. The results are available here
05/01/11
Alastair Kent, Genetic Alliance UK's Director receives an OBE
It is with great pleasure and delight that we can announce that Alastair Kent, Director of Genetic Alliance UK has been awarded an OBE in this year’s New Years Honours List for his work in healthcare, helping families affected by genetic conditions. We were all delighted to hear that's all that Alastair does has been recognised.
Chris Friend, Chair of Genetic Alliance UK said, “I can’t think of anyone more deserving of this honour. Alastair has contributed over the past 20 years to GIG (as we were) and now to Genetic Alliance UK as well as to healthcare policy in general. His contributions have been genuinely outstanding and I, for one, am absolutely delighted. What a fantastic way for us to begin 2011!”.
15/12/10
Genetic Alliance UK's comments quoted in DH NHS consultation response
The Department of Health published its response to the "Liberating the NHS" consultations today. We are pleased that some of Genetic Alliance UK's comments have been quoted, and hope the concerns we raised regarding some of the deficiencies of the proposals have been taken just as seriously. You can read our original submissions here.
10/06/10
Genetic Alliance UK archives are given top priority at the Wellcome Library
We are very pleased to announce that our key charity documents are now being archived at the Wellcome Library, part of the Wellcome Trust. This is excellent news for our organisation, and as our Director says "Having our work saved in this way will not only mean that our activities are preserved for future researchers but also that we are able to reach an even wider audience who will learn about the work of our charity and the lives of those affected by genetic conditions"