Internet links - Academic and Government

Please link to this website: We welcome links from other websites, especially sites with information about genetic disorders. See info on linking to Genetic Alliance UK.

• Advisory Committee on Genetic Testing
• The AHRB Research Cen
  tre for Studies in Intellectual Property and Technology Law
• Association of Medical Research Charities
• British Society for Human Genetics
• Centre for Education Genetics
• Capability - Capacity building for the transfer of genetic knowledge into practice and prevention, funded by the European Union for 3 years (from 2007)
• Diabetesgenes.org an information resource for professionals and patients on the genetic types of diabetes.
• Directorate General III-E 3 at the European Commission pharmaceutical and cosmetic department of the EU. Includes "Rules governing medicinal products in the EU"
• Directory of UK Academic Sites
• Directory of UK Research Sites
• Directory of UK Universities
• EQUIP - NHS website which signposts members of the public to useful health
  and social care websites and has a directory of over 4200 support groups and services both national and local to the West Midlands.
• European Genetic Alliances' Network
  
• European Commission study of socio-economic research in the life sciences
• European Medicines Agency
• European Society of Human Genetics
  
• Eurostemcell - European Consortium for stem cell research
• Euregene - European Renal Genome Project
• Euregene - a kidney tutorial - learn how the kidney works.
• Genetic and Rare Diseases Information Center
• GenePool - the specialist library for clinical genetics. This site is aimed primarily at health professionals but is open to anyone from specialists to patients.
• Genetics, Society and Policy - an open access journal provides an outlet for interdisciplinary research on the social, ethical and legal aspects of genomics
• Gene Therapy Advisory Committee
• Health EU - Public Health Thematic Portal. Official public health portal of the European Union
• Human Genetics Commission
• Human Genome Project Education Resources
• Human Tissue Authority - licenses and inspects organisations that store and use human tissue for purposes such as research, patient treatment, post-mortem examination, teaching and public exhibitions.
• Managed Clinical Networks in Scotland- the Scottish NHS has a range of managed clinical networks, groups of clinicians, healthcare professionals, NHS managers and patients that work together to improve the quality of clinical services for patients with experience of a particular illness. FANS is a managed clinical network hosted by NHS Tayside, and created to improve healthcare services for familial arrhythmia patients, their families and carers.
• Medline at Healthworks - searchable database of published scientific and medical literature. You can search by keyword (e.g. drug name), author, journal and date.
• National Genetics Reference Laboratory
• National Human Genome Research Institute - Genetic Education Link Resources
• National Office for Public Health Genomics (HuGENet) - Human Genome Epidemiology Network
• National Screening Committee - supporting the genetic service network in the UK.
• NHS Evidence - Health Information Resources, formally the National Library for Health
• National Metabolic Biochemistry Network (Biomedical Genetics)
  contains a list of specialist metabolic tests which are provided in the UK.
• Net Doctor - Independant health website
• Neuromuscular Network - Treat NMD - A European initatives to ecelerate treatments for neuromuscular disorders.
• NHS fetal anomaly Screening Programme - patient information leaflets.
• NHS Direct
• NHS Choices - search accross NHS websites throughout the UK.
• Office of Rare Diseases section of the US National Institue of Health. Includes information on rare diseases, patient support group, research and clinical trials, genetics information, news and other information
• PHGEN II - Public Health Genomics a European Network.
• Royal College of Physicians of London
• Scottish Stem Cell Network - Brings together scientists, clinicians, business and society to enable advances in stem cell biology
• Telling Stories - Understanding Real Life Genetics a resource hosted by the NHS National Genetics Education and Development Centre
• The Department of Health
• The Medical Research Council (MRC)
• The Roslin Institute - The leading centre for biotechnology.
• The Sanger Centre
• The Wellcome Trust
• The Wellcome Trust Centre for Human Genetics
• UK Clinical Molecular Genetics Society
• UK Genetics Society
• UK Genetic Testing Network (UKGTN)
• Yahoo! Medical - Pharmaceutical News - includes latest news stories (mainly business and financial)
• The Wellcome Trust - The Human Genome Site

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