Internet links - Academic and Government

Please link to this website: We welcome links from other websites, especially sites with information about genetic disorders. See info on linking to Genetic Alliance UK.

• Advisory Committee on Genetic Testing
• The AHRB Research Cen
  tre for Studies in Intellectual Property and Technology Law
• Association of Medical Research Charities
• British Society for Human Genetics
• Centre for Education Genetics
• Capability - Capacity building for the transfer of genetic knowledge into practice and prevention, funded by the European Union for 3 years (from 2007)
• Diabetesgenes.org an information resource for professionals and patients on the genetic types of diabetes.
• Directorate General III-E 3 at the European Commission pharmaceutical and cosmetic department of the EU. Includes "Rules governing medicinal products in the EU"
• Directory of UK Academic Sites
  
• Directory of UK Universities
• EQUIP - NHS website which signposts members of the public to useful health
  and social care websites and has a directory of over 4200 support groups and services both national and local to the West Midlands.
• European Genetic Alliances' Network
  
• European Medicines Agency
• European Society of Human Genetics
  
• Eurostemcell - European Consortium for stem cell research
• Euregene - European Renal Genome Project
• Euregene - a kidney tutorial - learn how the kidney works.
• Expanded Newborn Screening - The expanded screening website contains information about the pilot expansion of the newborn bloodspot screening programme to include a further five rare inherited metabolic conditions (GA1, HCU, IVA, LCHADD & MSUD) and contains information about these conditions.
• FANS - FANS is a managed clinical network hosted by NHS Tayside, and created to improve healthcare services for familial arrhythmia patients, their families and carers.
• Genetic and Rare Diseases Information Center
• GenePool - the specialist library for clinical genetics. This site is aimed primarily at health professionals but is open to anyone from specialists to patients.
• Genetics, Society and Policy - an open access journal provides an outlet for interdisciplinary research on the social, ethical and legal aspects of genomics
• Gene Therapy Advisory Committee
• Health EU - Public Health Thematic Portal. Official public health portal of the European Union
• Human Genetics Commission
• Human Genome Project Education Resources
• Human Tissue Authority - licenses and inspects organisations that store and use human tissue for purposes such as research, patient treatment, post-mortem examination, teaching and public exhibitions.
• Managed Clinical Networks in Scotland - the Scottish NHS has a range of managed clinical networks, groups of clinicians, healthcare professionals, NHS managers and patients that work together to improve the quality of clinical services for patients with experience of a particular illness.
• Medline at Healthworks - searchable database of published scientific and medical literature. You can search by keyword (e.g. drug name), author, journal and date.
• National Genetics Reference Laboratory
• National Human Genome Research Institute - Genetic Education Link Resources
• National Office for Public Health Genomics (HuGENet) - Human Genome Epidemiology Network
• National Screening Committee - supporting the genetic service network in the UK.
• National Voices - National Voices is the coalition of health and social care charities. They work together to strengthen the voice of patients, service users, carers, their families and the voluntary organisations that work for them.
• NHS Evidence - Health Information Resources, formally the National Library for Health
• National Metabolic Biochemistry Network (Biomedical Genetics)
  contains a list of specialist metabolic tests which are provided in the UK.
• Net Doctor - Independant health website
• Neuromuscular Network - Treat NMD - A European initatives to ecelerate treatments for neuromuscular disorders.
• NHS fetal anomaly Screening Programme - patient information leaflets.
• NHS Direct
• NHS Choices - search accross NHS websites throughout the UK.
• Office of Rare Diseases section of the US National Institute of Health. Includes information on rare diseases, patient support group, research and clinical trials, genetics information, news and other information
• PHGEN II - Public Health Genomics a European Network.
• Royal College of Physicians of London
• Scottish Stem Cell Network - Brings together scientists, clinicians, business and society to enable advances in stem cell biology
• Telling Stories - Understanding Real Life Genetics a resource hosted by the NHS National Genetics Education and Development Centre
• The Department of Health
• The Medical Research Council (MRC)
• The Roslin Institute - The leading centre for biotechnology.
• The Sanger Centre
• The Wellcome Trust
• The Wellcome Trust Centre for Human Genetics
• UK Clinical Molecular Genetics Society
• UK Genetics Society
• UK Genetic Testing Network (UKGTN)
  
• The Wellcome Trust - The Human Genome Site

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