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We just launched a new project to capture patients' experiences of applying for insurance including any concerns and challenges faced. You can have your say by taking part in the survey.
Accessing appropriate insurance can be a significant problem for many patients and families affected by genetic conditions. We regularly receive telephone calls and emails from people affected by genetic conditions who are finding it difficult or impossible to access appropriate or affordable insurance cover. Many patients are not aware what insurance companies are allowed, or not allowed, to ask them, or what they need to tell them when applying for insurance.
Genetic Alliance UK is working with the UK Forum for Genetics and Insurance to gather a better understanding of patients’ experiences, concerns and challenges when applying for insurance. This information will help us update the resources available on our website to meet the needs of our members and their patients and to reflect any new challenges arising from the development of new technologies like genome sequencing.
You can take part if you or your family members’ genetic condition, or predisposition for a genetic condition, has shaped your experience of applying for insurance.
We want to hear your experience of applying for any of the following: life insurance, critical illness insurance, private medical insurance, income protection insurance or travel insurance.
You can take part by completing this survey to tell us about your experience of applying for insurance: https://www.surveymonkey.com/r/genomics_and_insurance
The survey should take 20 min to complete. You can complete a portion of a survey and return later to finish the rest.
You can find more information here.