News & Events


Last Reviewed 15/01/2018

By Jess Bateson

We are delighted to announce that our Ambassador, Alastair Kent OBE, has won the EURORDIS Lifetime Achievement Award 2018.

Our Chief Executive, Dr Jayne Spink, comments:

'Alastair has been a powerful and tireless advocate for the rare and genetic disease community for more than a quarter of a century. This Lifetime Achievement Award is very richly deserved and Genetic Alliance UK is delighted that Alastair's commitment and many achievements have been recognised in this way.'

Hear Alastair reflect on winning the Lifetime Achievement Award, leading our team for almost 25 years and how things have changed for rare disease patients over that time in this clip.

To see more details about the Award, click here.

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