When living with a rare condition, it can be very easy to never meet another person with the same co…
On Tuesday 14 July 2015, 94 members and other stakeholders joined us at our annual conference.
This year we celebrated our 25th birthday. It was a great chance to look back at the achievements in genetic medicine and healthcare, as well as our achievements as a membership organisation, over the last 25 years. It was also the perfect opportunity to begin to think about what’s next, not just for Genetic Alliance UK, but for healthcare and genomic medicine too.
We heard from our Director, Alastair Kent OBE, Professor Karen Temple of the University of Southampton, and Mark Bale the Department of Health about developments in genomic medicine and policy over the last 25 years.We also got the chance to celebrate three of our members, hearing from the AKU Society, Alstrom Syndrome UK and Niemann-Pick UK on the brilliant work they do within their communities.