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Help us produce the information you need

Last Reviewed 24/04/2016

By Mariana Campos

We're looking for patients, family members and carers to review some of the information on our website. Can you help? 

One of the aims of our team is to improve the lives of those affected by genetic conditions by ensuring that high quality information is available to all who need it. In order to help us meet this objective we produce patient information ourselves. You can find that information on our website. We are reviewing that information and need your help to ensure that the information we produce is of high quality and meets your needs.

Would you be available to review the information on our website?

You can decide how much time you can spare and how often you want to be contacted. You can do it from the comfort of your home. You don’t need any previous experience – we want to know if the information we produce and the language we use is clear. If you want to help us please fill in this short survey.

If you want more information, please contact Mariana or call our offices 02077043141

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