On Tuesday 27 October 2015 the Cross Party Group on Rare Diseases met in the Scottish Parliament. 24…
At the recent Cross Party Group (CPG) on Rare Diseases, it was agreed that specialist nurses are extremely valuable to families affected by rare diseases in Scotland. However, it was noted that a significant variation in the provision of specialist nursing services for rare diseases exists.
The CPG has agreed to produce a report considering the value of specialist nursing and identifying the gaps in service provision across Scotland. To do this, we need your help.
If you are interested in participating in this work by sharing your experience of specialist nursing in Scotland, please email our Development Officer in Scotland, Natalie, by Friday 8 January 2016
In particular, we want to hear:
We are also keen to hear from any organisation that would like to take part as a case study for this report.
Please contact Natalie if you have any comments or questions about this work, with the subject line “CPG Specialist Nursing Report”.