On Tuesday the 27 of September 2016 we had our annual conference and annual general meeting at Amnesty International UK.
This was a great opportunity to celebrate the innovative and successful partnerships of our member and to showcase the best examples of partnerships with the patients, public, clinicians, commissioners and researchers and to share and learn from your experiences.
We heard from speakers covering a variety of issues: Dr Gina Radford, Deputy Chief Medical Officer discussed the impact of genomics on healthcare; Sarah Rickwood from IMSHealth covered the new challenges of Orphan Drugs in Europe.
With the focus of our conference being partnerships, we heard from Jan Mather, Chair of Behcet’s Patients Centres on their partnerships with clinicians.
Our members were also at the centre of our event: David White from Cavernoma Alliance UK, Heather Band from Batten Disease Family Association and Gillian Thomas, a carer for a patient with myeloma, shared their experiences of partnerships with a variety of stakeholders such as researchers, patients and policy makers.
The event finished with a speech from Jonathan Fielden, Director of Specialised Commissioning, highlighting the importance of partnership between local and national commissioning.
It was excellent to see our members coming together, to hear about achievements for the previous year, what’s going on in the research and policy world relating to genetics and to announce our plans for the year ahead.