Job title: Policy Officer
Responsible to: Director of Policy
Salary: £24,611 per annum
Benefits: 33 paid holiday days per year, plus employer contribution to pension
Contract: Full-time (35 hours a week), 12 months, with the potential to extend
Located: Barclay House, Level 3, 37 Queen Square, London WC1N 3BH
To carry out research into access to medicine pathways, and to manage the delivery of workshops and meetings with stakeholders, as part of the delivery of Genetic Alliance UK's year-long 'Resetting the Model' project.
This project has been designed to give Genetic Alliance UK's experienced policy, public affairs and communications teams the flexibility and space to deliver a new vision for access to rare disease medicines for the UK.
Our faulty system for decision-making on access to rare disease medicines is causing an inequality of availability of medicines for patients compared to other large European nations. The UK is behind Germany, France, Italy and Spain in terms of speed of decision making and number of medicines approved.
Around 3.5 million people in the UK will be affected by a rare disease at some point in their lives. There are more than 6,000 rare diseases, but only 200 of these have a licensed innovative medicine in Europe. We have fifteen pathways to assess treatments for a small fraction of a small patient cohort in the UK. They all work in different ways, and sometimes we have four separate decisions being made on the same treatment – not all of them reaching the same conclusion.
The 'Resetting the Model' project aims to change this.
Please apply by email to: email@example.com with the subject heading ‘Policy Officer.’
Your application should include your CV and a cover letter addressed to Nick Meade and explaining why you would like this job and why you are a suitable candidate. Both of these should be attachments to your email and as PDF or Microsoft Word format. Please include your name on the document titles eg ‘JohnSmithcv.pdf’ and ‘JohnSmithcoverletter.pdf’.
9 am, Monday 5 March 2018.
Interviews will be held on Monday 12 March 2018, during office hours.
You can download this job description here.