Our Work

Talking about genome editing

Last Reviewed 03/11/2016

Talking about Genome Editing is a project lead by Genetic Alliance UK and Progress Educational Trust. The project involves a series of workshops and online engagement events exploring the language, messages and implications of genome editing. This project is being funded by Wellcome. As part of this project, we aim to develop resources that reflect patients’ views on the best ways to communicate about genome editing. We hope these resources will be useful to all those talking to patients and the wider public about this topic. If you want to be informed about updates on this project and play a role in developing the language and metaphors used to discuss genome editing, register here.

Why should I take part?

Are you interested in how genome editing could shape research and clinic in the future?

Do you want to help us communicate on this topic in a way that is clear to all those interested?

20 years from now it is expected that many new cures and treatments will be delivered either as a consequence of research using genome editing or, directly, via genome editing derived treatments.

Patients affected by rare and genetic conditions are likely to benefit from these techniques. It is important that these patients, and the wider public, have access to up to date information on these techniques.

But are we using a language clear enough for anyone to understand?

What is the best way to communicate about genome editing?

We want to make sure we communicate in a way that patients identify with and that we use vocabulary and comparisons that mean something to our audiences. We want to help shape the way researchers, clinicians and the media talk about this topic. To achieve that, we need your help.

Who can take part?

If you or a member of you family has a diagnosed genetic or non-genetic rare condition or suspected genetic condition we would like to hear from you. You will have to be over 18 to take part.

What should I do next?

If you want to hear updates about this project you can register your interest here.

Registration to take part in the face to face workshops is now closed.

Please contact Mariana Campos either by email (mariana.campos@geneticalliance.org.uk) or by phone (020 7831 0883) if you have any questions or require more information.

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