EuroGenGuide

To provide high quality information about Genetic Testing and Research to the European Public - 2010

Welcome to EuroGenGuide

EuroGenGuide contains information about genetic testing, counselling and research across Europe. The information is intended as a resource for both patients and their families, and health professionals alike. Please click on the links below to download information on a range of topics which may be relevant to you.

Completed leaflets

About EuroGenGuide

Further Information

 

The completed EuroGenGuide leaflets for patients and health professionals are available here:

For Patients:

Introduction

Informed Consent

Biobanking

Gender Issues

Ethnic Minorities

Access & Benefit sharing 

 

For Health Professionals:

Introduction

Informed Consent

Biobanking

Gender Issues

Ethnic Minorities

Access & Benefit sharing

 

About EuroGenGuide

EuroGenGuide was a three-year project, funded by the European Commission for Life Sciences and Biotechnology. The work was funded under the Sixth Framework Programme for Research and Technological Development

The materials on this website were launched officially in December 2009. The materials are managed and maintained from London by the Genetic Alliance UK. EuroGenGuide is a Specific Support Action for the pan-European Network of Excellence, EuroGenTest. The aim of EuroGenGuide is to provide accurate, high-quality information about genetic testing and research in Europe, for use by all those living in the continent to whom information about genetics is relevant, whether as a patient, a relative of a patient, or a health professional interested in providing genetic services to their patients.

The core information on this site has been divided into documents for the public and patients, and documents for use by health professionals.

EuroGenGuide particularly wishes to be able to provide knowledge and information to those regions of Europe where knowledge of genetics and available treatment is still limited. In raising the public visibility and awareness of genetic research and what it may be able to achieve in future, EuroGenGuide hopes to be able to contribute to maintaining the pace of this research and thus ensure that an increasing number of people affected by genetic disease can get the help and treatment they need, wherever in Europe they might be.

The project began in January 2007, and was launched across the continent in web and printed form at the end of 2009. The EuroGenGuide material was created and devised by a team of ten partner organisations from around Europe, from across the spectrum of genetics in healthcare.The participants were invited to take part in the project due to the specific areas of professional knowledge and knowledge that they can bring to EuroGenGuide, in order to create material relevant to as many different people as possible. Made up of a diverse mix of patient support groups and doctors from a range of European nations.