Past Project Archives: Project Reports

Project Reports: 1999 - 2007

• March 2007:
  Family Route Map Focus Group Report (plain text version) (two coloured version)
  This report details the series of six Focus Groups held in 2006 for patients, their families and carers, providing us with relevant and up to date patient experience to help in developing Family Route Maps.
  
• September 2006:
  Developing European Quality Standards for Patient Information on Genetic Testing
  Eurogentest Interim Report
  
• November 2005:
  Promoting Equity of Access to Genetic Healthcare: 
  A guide to the development of linguistically and culturally competent communication services.
• July 2003:
  Ethnic Monitoring in Clinical Genetics
  
• September 1999:
  Achieving Integrated Services and Support for Families with Rare Genetic Disorders
  
• May 1999:
  Access to Genetic Services by Minority Ethnic Populations
  Report of a four-month pilot study undertaken to ascertain current provision of genetic services to minority ethnic populations. Written by Aamra Darr.