A-Z Patient Leaflets
This section contains all the english language publications that Genetic Alliance UK has produced for patients affected by genetic disorders and their families.
For publications in other languages please see our Library of leaflets in other languages section.
Please note that some of the PDF files below are large (1MB) and may take a while to download. If you have problems opening the file, please right click the link and choose the option 'save as' to save the file on your computer. You can then open it from there.
Downloads
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To read online |
Printable booklets |
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Amniocentesis Test |
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Carrier Testing |
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Chorionic Villus Sampling (CVS) Test |
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Chromosome Changes |
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Chromosome Translocations |
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Cord Blood Leaflet |
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Dominant Inheritance |
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FAQ on Biobanks - To help promote understanding and to secure informed involvement with the activities of biobanks and the research they make possible, European Genetic Alliances Network(EGAN) and Roche have produced this Frequently Asked Questions leaflet |
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FAQ on Clinical Trials |
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FAQ about Genetic Testing |
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Genetic Glossary |
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Gene Therapy and Ethics – The Patients View – an EGAN publication |
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Getting the most out of your Genetic appointment - Leaflet developed by the Department of Health through consultation with patients. It aims to help patients to make decisions on their treatment and care in partnership with a health professional. If you would like to order copies of this flyer please contact the Department of Health on |
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Genetics Whats it Got to do with me? (please note that some of the contact details may be out of date in this publication, if you have any questions please contact us ) |
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Booklet Format
Booklet Format |
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Glossary of terms used in Clinical Trials |
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Information about your Genetic Appointment |
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Inherited Cancer |
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Life Insurance Guide |
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Living without a diagnosis |
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Over the Counter Testing |
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| Patient Involvement in Clinical Research - A guide for Patient Organisations and Patient Representatives |
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| Patient Involvement in Clinical Research - A guide for Sponsors and Investigators | ||
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Predictive Testing |
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Personalised Healthcare |
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Recessive Inheritance |
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A guide to registry design |
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What happens in a Genetic Laboratory |
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Travel Insurance Guide |
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What is a Genetic Test |
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X Linked Inheritance |