Reports
On this page you will find reports from various workshops and consultations that Genetic Alliance UK have carried out over the years.
December 2012
Final project report from the Ethnicity and Access project
April 2012
Final project report from the Citizens' Jury project, Risks and Benefits:
November 2011
Final project report from the Facilitating Networks project: Facilitating Networks report
November 2011
Final project report from the Patient Information Prescriptions project: patient information prescriptions report
Final project report from the Patient Information Pathways project: patient information pathways report
April 2011
PatientPartner final project report. This project looked at improving patient involvement in clinical research
Patient involvement in clinical research: A guide for Patient Organisation and Patient Representatives
and A guide for Sponsors and Investigators
SWAN UK Research
Summer 2010
July 2010. Dr. Anil Mehta, at the University of Dundee has kindly written this short guide to give hints and tips to setting up a registry.
Scottish Stakeholder Meeting
April 2006
Access to samples and tissues for research and clinical practice
January 2006
Risk Communication Workshop Report
Looking at some of the issues surround Biosimilar medicines
July 2005
Translation Workshop Report
held on 1st December 2003
Research Approval and Rare Genetic Disorders
Minutes from meeting held June 2003
What is the Nature of Evidence
Report of Workshop held June 2003
What can we deduce from a family history?
Current issues in Genetics and Insurance Practice. Workshop held on 17th January 2003
The Uses of Genetic and other Predictive Medical Information in Insurance
The Handling of Rare Events. An invitation workshop convened by the Genetic Interest Group.
26th June 2002
Where is Research Going? What are we doing about it?
26th - 27th May 2002, Strasbourg, France.
Workshop on ethnicity profiling in clinical genetics
Clinical education centre, Glenfield hospital - Leicester
25th April 2002
Research and Rare Genetic Disorders
Report of a workshop
19th April 2002
Advanced Workshop on Embryo Research
(September 2001)
The report of an advanced workshop held at the Club de la Fondation Universitaire, Bruxelles, Belgium, 14-16 September.
Predictive Genetic Information and Private Commerical Insurance Workshop
Royal Society of Medicine, London.
February 2001
New Paradigm: New Policies, Healthcare and the New Genetics in Britain and Germany
Report of a seminar organised by the Genetic Interest Group under the auspices of the European Federation of Biotechnology Task Group on the Public Perceptions of Biotechnology
September 1999