Videos: Self Management of Rare Conditions

Managing Fragile X Syndrome

Jim & Kathryn Paterson share their story of bringing up their now adult son Martin who was born with Fragile X Syndrome:

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More Information

Fragile X Video Transcript

Fragile X Society:

Tel: 01371 875100


The Society is a Registered Charity in England and Wales No. 1127861 and a Charitable Company Limited by Guarantee No. 6724061, established in 1990. It offers support, information and advice to affected families and professionals. It publishes a newsletter, has a wide range of information available and provides opportunities for families to meet others and share experiences. The Society has over 1,700 members.