Videos: Self Management of Rare Conditions
Managing Fragile X Syndrome
Jim & Kathryn Paterson share their story of bringing up their now adult son Martin who was born with Fragile X Syndrome:
You can help Genetic Alliance UK if you are a person living with or caring for a person with Fragile X by watching this video and then completing our brief survey.
Please Click Here to be taken to our survey.
Fragile X Society:
Tel: 01371 875100
The Society is a Registered Charity in England and Wales No. 1127861 and a Charitable Company Limited by Guarantee No. 6724061, established in 1990. It offers support, information and advice to affected families and professionals. It publishes a newsletter, has a wide range of information available and provides opportunities for families to meet others and share experiences. The Society has over 1,700 members.