Videos: Self Management of Rare Conditions

Managing Laurence Moon Bardet Biedl Syndrome

Allan Clark shares his story of raising two sons with Bardet Biedl Syndrome, a condition that affects 1 in between 70-100,000 people:

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More Information

LMBBS Video Transcript

LMBB Society:

Tel: 01633 718415

Email:

www.lmbbs.org.uk

The Society is a Registered Charity in England and Wales No. 1027384, established in 1987. It offers support and advice and contact with other families where possible. Activities include raising awareness of the condition, an annual family conference and fundraising. It publishes a regular newsletter and has information available. The Society works closely with medical professionals and is involved in a number of specialist clinics around the country. It represents over 200 families.