Videos: Self Management of Rare Conditions
Managing Turner Syndrome
Fiona McLean shares her story of managing Turner Syndrome, a rare genetic condition that affects 1 in every 2500 girls born:
You can help Genetic Alliance UK if you are a person living with or caring for a person with Turner Syndrome by watching this video and then completing our brief survey.
Please Click Here to be taken to our survey.
Turner Syndrome Support Society:
Helpline: 0845 230 7520
Office: 0141 952 8006
The Society is a Registered Charity in England and Wales No. 1080507, established in 1999. It offers support and information to girls and women who have Turner syndrome, their families and friends. The Society works with medical specialists to raise awareness about the condition and to encourage research into all aspects of Turner syndrome. It publishes a quarterly newsletter, hosts open days and an annual conference. It encourages enquiries from health, educational and social services professionals. The Society has over 700 members.