Videos: Self Management of Rare Conditions

Managing Turner Syndrome

Fiona McLean shares her story of managing Turner Syndrome, a rare genetic condition that affects 1 in every 2500 girls born:



More Information

Turner Syndrome Video Transcript

Turner Syndrome Support Society:

Helpline: 0845 230 7520

Office: 0141 952 8006


The Society is a Registered Charity in England and Wales No. 1080507, established in 1999. It offers support and information to girls and women who have Turner syndrome, their families and friends. The Society works with medical specialists to raise awareness about the condition and to encourage research into all aspects of Turner syndrome. It publishes a quarterly newsletter, hosts open days and an annual conference. It encourages enquiries from health, educational and social services professionals. The Society has over 700 members.