Video stories about self-management of conditions

Welcome to the Genetic Alliance UK Resource Centre Video Interview Library, we hope you find what you're looking for below.

Our website provides video interviews with people who live with genetic disorders. It is one thing to hear about genetic disorders and genetic issues from a Scientist, Politician or Campaigner, these are the people who have chosen to be involved with genetic issues. However, it is quite another thing to hear from people who actually live with the genetic disorders. These are the people who did not choose to be involved with genetic disorders but live with it every day.


Video Interviews:
Self Management of
Rare Conditions

Video Interviews:
Personal Experiences