DC Action is a charitable organisation focused on improving the understanding and treatment of Dyskeratosis Congenita (DC) in the UK. We aim to raise awareness of the condition within the medical community, and for patients and their families.
Our activities focus on three core areas:
Our advocacy work focuses on research and expert care and treatments.
Through education, we aim to raise awareness of Dyskeratosis Congenita and telomere repair defects and their management amongst medical professionals, patients and the public.
We provide support, coordination and advice for people affected by Dyskeratosis Congenita and telomere repair defects.
We would like to hear from patients, their families, and their medical advisors about their experiences, and connect people in the UK who have this disorder in order to build awareness of the condition outside of the community.