stiff person syndrome
This site is for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may be of interest to caregivers, care professionals and researchers as well as advocates for the condition and the General Public.
We always welome donations, no matter how large or small. You can donate on-line or via a donations form.
To donate by secure credit card transaction, please use the button below. The full value of your donation (less credit card fees) comes to the charity.
The group and charity was set up by Liz Blows with the following as it’s aims:
(1) The relief of sickness and the protection and preservation of the health of persons affected by Stiff Person Syndrome and their families and carers.
(2) The advancement of the education of the medical profession and the general public into Stiff Person Syndrome and its implications.
(3) The promotion of research into the causes, effects, treatment and management of Stiff Person Syndrome and to disseminate the useful results thereof.
“Stiff Man Syndrome” (SMS) was the name assigned to the condition when first identified in the 1950s by Moersch and Woltman in the USA. In recent years, in the modern world of PC, the condition has also become known as “Stiff Person Syndrome” (SPS). SPS does not appear to differentiate between sex, colour, or creed, although UK evidence tends to suggest women are more likely to fall victim to SPS.
SPS is a neurological condition believed to be of auto-immune origin. It is unique among neurological diagnoses due to its lack of significant similarity to any other neurological diseases. Although rare, once observed it is quite unforgettable. Because of its rarity, many neurologists and GPs are not aware of the condition. In most cases, the first symptoms are insidious and victims are often initially misdiagnosed with anxiety or depression. The onset is most frequent between the third and fourth decades of life.