trps support group uk

TRPS Support Group UK

TRPS Support Group UK provides sympathetic support to those with trichorhinophalangeal syndrome and their families.

We are a small, not-for-profit organisation run by our members who all live daily with the effects of TRPS.

Our main aims are:

Helping others who may be without support or information about the condition
Giving reassurance to others through our own experience
Raising awareness of TRPS amongst the medical profession and the general public
We offer support in a variety of ways:

Providing a forum for exchanging knowledge and seeking further information
Helping others to source clinical help and management
Providing a listening ear when needed
Exchanging emails
Arranging introductions

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