UK Potsies is a campaign and organisation dedicated to raising Postural Orthostatic Tachycardia Syndrome awareness in the UK. We are a member of Genetic Alliance UK. We aim to reach out and help sufferers as well as raise funds for the Autonomic Charitable Trust (ACT)- a charity raising funds to research autonomic disorders such as PoTS.
UK Potsies also provide an online haven for other PoTS sufferers – or anyone who may be closely affected – to come together for help and support. Together we are doing all we can to spread the word about this rare and chronic illness and raise funds for a fantastic research charity. Please contact us with your own stories and experiences at [email protected]