Wolfram Syndrome UK
Wolfram Syndrome UK are the only support group and website in the UK for this condition. This site was started in 2010 until then the only website associated with WS was a worldwide site. There was no easy to read information available and no real support, as many medical professionals had or still have never heard or come across the syndrome. It was felt the UK required a web site where families can talk and find information that may be useful.