News & Events

We are recruiting: Fundraising officer

Last Reviewed 27/10/2017

By Eva Peters

Job title: Fundraising Officer

Responsible to: Director of Fundraising & Communications

Salary: £25,000 per annum, pro rata

Benefits: 33 paid holiday days per year, plus employer contribution to pension

Contract: Part-time (21 hours a week), with the opportunity to become full-time

Located: Barclay House, Level 3, 37 Queen Square, London WC1N 3BH

About us:

Genetic Alliance UK is the national charity supporting all those affected by genetic, rare and undiagnosed conditions with a membership of over 190 voluntary organisations and patient groups. Our aim is to improve the lives of patients and families by ensuring that high quality healthcare is available to all who need it. We actively support research and innovation across the field of genetic medicine and rare diseases. We are the only group that provides a voice for patients and families with genetic, undiagnosed and rare conditions on a European, UK and devolved nation level.

Our knowledge and experience allows us to tackle difficult and complex subjects from a position that is inclusive across a very wide range of genetic, rare and undiagnosed conditions. For children, adults and families affected by genetic conditions, regardless of the condition itself, many of the problems and barriers they face are the same. Genetic conditions are life-long and serious illnesses, many of which affect multiple systems of the body. Many are progressive, meaning affected individuals lose their health and quality of life and some may die prematurely. Currently, few genetic conditions can be cured, and only a handful have effective treatments.  All patients need appropriate medical care and support as well as a speedy and accurate diagnosis when their symptoms present. It is vital that medical research continues to shed light on these conditions and that interventions and therapies are developed and are made available to patients as soon as possible.

In addition to supporting our members, Genetic Alliance UK also runs following the long-term projects:

Rare Disease UK – a multi-stakeholder campaign brought together to work with Government to implement the UK Strategy for Rare Diseases and improve access to treatment and care.  

SWAN UK (syndromes without a name) – the only UK based network providing information and support to families of children and young adults who have undiagnosed genetic conditions.

To succeed in our work, we need to grow our community fundraising income across Genetic Alliance UK, SWAN UK and Rare Disease UK, and this role is pivotal to that success.

Purpose of the role:

The Fundraising Officer is a central role within the organisation and will work cross-departmentally with our Rare Disease UK and SWAN UK teams to support fundraisers across all areas of our work. Reporting to the Director of Fundraising and Communications, the successful candidate will encourage community fundraising, spot fundraising opportunities and trends and capitalise on them. They will also be responsible for all aspects of fundraising administration and often the first point of contact for fundraisers interested in supporting our work.

This is an exciting role for an enthusiastic and proactive individual who wants to establish and develop their career in charitable fundraising. For the right candidate, this is an opportunity to gain substantial experience in delivering a range of fundraising activities while working in a supportive environment and within a wider organisational strategy.

The role is mostly based in our offices at Genetic Alliance UK, Level 3, Barclay House, 37 Queen Square, London, WC1N 3BH. However, there will be occasional travel across the UK to support events.

If you have a drive to help people with genetic, undiagnosed and rare conditions and are looking for a deserving charity to develop your skills then we want to hear from you. 

Principle duties:

Supporting fundraisers to plan their own events and activities

Advising on health and safety, event planning and budgeting to make our fundraisers feel valued and ensure their events are financially successful.

Keeping up-to-date records and giving timely recognition of donations

In charge of all aspects of administering the fundraising programme, making sure that banking and thanking are done in a timely and appropriate manner and acting as the first point of contact for fundraisers. You will also be expected to create financial reports of income and expenditure.

Creating fundraising communications to encourage greater participation

Working with the communications team to strict deadlines to ensure that fundraising is well promoted and the success of fundraisers is celebrated to encourage greater take-up of fundraising activities. You will be expected to regularly produce content for social media, e-news and the website.

Representing the charity at events hosted by community and corporate supporters

Showcasing the work of the organisation and being confident in speaking at events about our work to connect fundraisers to the cause and encourage fundraising.

Developing engaging national fundraising campaigns

Thinking creatively, developing action plans and budgets to support national campaigns like Undiagnosed Children’s Day and Rare Disease Day. You will be able to understand the diverse needs and abilities of our community and create accessible fundraising initiatives that work for a geographically dispersed supporter base.

Maintaining relationships with key suppliers

Understanding and maintaining relationships with external suppliers for fundraising e.g Great Run, Just Giving etc. to ensure that we are abreast of any new trends and developments or promotional opportunities.

Producing and keeping track of merchandise and promotional materials

Creating, ordering and managing a range of promotional materials and merchandise for the fundraising programme, including overseeing updates to fundraising packs and other printed and online fundraising materials.

Person specification:

Education and qualifications

  • Graduate or equivalent experience.
  • Good level of IT literacy, including a good knowledge of Microsoft Office applications and social media.

Essential qualities, skills and experience

  • Experience of organising and supporting events and/or community fundraising in a voluntary or paid role.
  • An outgoing, enthusiastic and helpful personality.
  • A creative approach to fundraising/events.
  • Great customer service skills, the ability to recognise and meet the needs of individuals and to manage expectations when required.
  • Excellent written and verbal communication skills.
  • Numeracy and the ability to understand basic financial information.
  • Excellent organisational skills and ability to plan ahead, keep records, manage deadlines, prioritise workload and maximise the use of time.
  • Ability to work in a team as well as to use individual initiative and judgement.
  • A commitment to the aims and objectives of Genetic Alliance UK.

Desirable qualities, skills and experience

  • An understanding of genetic, undiagnosed and rare conditions, their impact on patients and families, and how being affected might act as a motivation for fundraising.
  • Experience of managing budgets, forecasting income and financial reporting.
  • Experience of managing charity accounts for fundraising suppliers like Just Giving or other fundraising sites.
  • Experience in a healthcare charity.
  • Experience of creating content for a range of communications channels.

Additional requirements

  • Undertaking any other duties that may reasonably be required on behalf of Genetic Alliance UK.
  • Working occasional evenings and weekends.
  • Willingness to travel (in the UK).

To apply:

Send your application to with the subject heading ‘Fundraising Officer.’

Please email your CV and an accompanying cover letter explaining why you would like this job and why you are a suitable candidate. Both of these should be attachments to your email and as PDF or Microsoft Word format. Please include your name on the document titles e.g. ‘JohnSmithcv.pdf’ and ‘JohnSmithcoverletter.pdf’.

Application deadline: 

9 am, Friday 10 November 2017.

Interviews will be held on Wednesday 22 November 2017, during office hours.

You can download this job description here.

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