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We're hiring: Research Officer

Last Reviewed 15/02/2017

We are looking for a part-time Research Officer who is keen to apply their research skills in order to have a positive impact on the lives of people affected by rare diseases.

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Job title: Research Officer

Responsible to: Director of Research

Salary: £27,000 ― £31,000 per annum pro rata, depending upon experience

Benefits: 33 paid holiday days per year pro rata, plus contribution to pension

Contract: 2 days per week (8 months, with potential for extension)

Located: 37 Queen Square, London, WC1N 3BH

Purpose of the role:

  • To conduct an exploratory study into the mental health implications for patients with rare diseases and their families/carers; their experiences and support needs. (Input from a university-based academic and clinical supervision will be arranged).
  • To contribute to the activities of the research and policy teams.

Principle duties:

  • Help deliver and submit a research proposal for ethics approval, drawing on expertise of staff at Genetic Alliance UK and partner mental health organisations.
  • Draft an interview guide for semi-structured interviews with rare disease patients and their families and carers to identify mental health concerns related to living with their rare disease; to explore their experience of mental health services and their support needs.
  • Conduct a small number of semi-structured interviews and analyse interview findings using thematic analysis.
  • Develop and administer an online survey to validate and extend interview findings.
  • Investigate options for estimating the prevalence of mental health problems (diagnosed and self-reported) among rare disease patients/carers.
  • Contribute to the writing of a project report and paper for peer-reviewed publication, and support the Director of Research to develop further research plans.
  • Disseminate findings to the policy team and support their development of policy initiatives as necessary.

Person specification:

Essential education and qualifications

  • First degree in a relevant subject.
  • Masters degree, which must have included research (awarded or soon to be awarded), or equivalent research experience in a relevant subject.

Essential qualities, skills and experience

  • A commitment to the aims and objectives of Genetic Alliance UK
  • Experience of research related to one or more of: the experience of NHS service users; mental health issues; disability issues. (This could be your masters research).
  • Experience of working directly with vulnerable people, such as those with mental health problems or with serious, possibly life-limiting conditions. This might be as a researcher or in another capacity such as voluntary work.
  • Experience conducting semi-structured interviews and quantitative surveys and the ability to analyse and interpret both qualitative and quantitative data. – Good level of numeracy and IT literacy.
  • Excellent written communication.
  • Excellent time management: ability to manage deadlines, prioritise workload and maximise use of time.
  • Presentation skills and experience of presenting to a variety of audiences.
  • The ability to work in a team as well as to use individual initiative and judgement.

Desirable qualities, skills and experience

  • Appreciation of current issues in genetics and/or rare diseases and health care, and their impact on patients and their families.
  • Appreciation of the value and importance of patient and family experiences to inform policy and practice.
  • Experience of conducting research with people with current or historical mental health problems.
  • Experience of conducting research with parents of young children.
  • Experience with NVivo and SPSS.
  • Experience of contributing to research ethics committee submissions and to peer reviewed publications.

Additional requirements

  • Undertake any other duties that may reasonably be required on behalf of Genetic Alliance UK.
  • To be able to work occasional evenings and weekends.
  • Willing to travel (in the UK)
  • The post will be subject to a DBS check.

 

To apply:

Please email your CV and an accompanying cover letter, explaining your interest in the post and why you are suited to it, to Dr Amy Hunter, Director of Research amy.hunter@geneticalliance.org.uk with the subject heading ‘Research Officer'.

Application deadline: 6 March 2017

Interview dates: 14 or 15 March 2017

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