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EUPATI UK platform meets with National Liaison Team
Cross Party Group on Rare Diseases
NSPKU meeting with NHS England
Giving undiagnosed patients a voice in Parliament
Genetic Alliance UK have supported 200 condition licences for PGD
Why we need an APPG on rare, genetic and undiagnosed conditions
Update from this week’s Scottish Medicines Consortium meeting
What’s unknown about NHS England’s prioritisation framework
Our thoughts on the Department of Health’s Triennial Review of NICE

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