Patients and families affected by rare and genetic conditions may face particular challenges within the health system. We work to ensure that their interests are represented in the decision making process in a wide range of areas. In this section, you will find examples of the evidence we have submitted to inform important and relevant political debates and consultations.
The Human Tissue Authority (HTA) regulates the removal, storage and […]
The department of health has been consulting on the draft […]
The Welsh health specialised services committee (WHSSC) has been consulting on […]