Leading the way for people affected by genetic conditions

Latest from Genetic Alliance UK

The Caldicott Review 

News

The Caldicott Review 

Join the genomics conversation

News

Join the genomics conversation

MPs support children with undiagnosed conditions

News

MPs support children with undiagnosed conditions

Tell NHS England how to decide which specialised services to fund

News

Tell NHS England how to decide which specialised services to fund

Our Work

We work on a variety of issues faced by families and individuals with genetic conditions. We aim to provide information, support families and influence the services needed by these patients. We also bring the patient voice into debates that matter to our community. Our work falls into different categories:  reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

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NICE’s evaluation of highly specialised technologies

Our Work

NICE’s evaluation of highly specialised technologies

New method of prioritisation for specialised services

Our Work

New method of prioritisation for specialised services

Upcoming changes to the Cancer Drugs Fund

Our Work

Upcoming changes to the Cancer Drugs Fund

Access to Medical Treatments (Innovation) Bill

Our Work

Access to Medical Treatments (Innovation) Bill
Our members can help

Our members can help

We are an alliance of over 180 patient organisations. We work with our members on campaigns, consultations and engagement projects to ensure our work accurately reflects the needs and concerns of patients and families affected by all types of genetic conditions. 

Our mission is to ensure that high quality services, information and support are provided to all. We actively support research and innovation across the field of genetic medicine.

All our members

Join our alliance of 180+ patient charities

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