“The excellent work that you do is so important. As a small non-profit we would not be able to gain the knowledge that you provide on our own. Thank you so much!!!”
Stacy Corke, Naitbabies, 2012

“Well done for all your hard work. I have enjoyed working with you and have always found your team very approachable and friendly.”
Fiona Copeland, PCD Family Support Group, 2012

“More of the same please! You are brilliant!”
Beverly Searle, Unique, 2012

Talking about our project SWAN UK: “Joining SWAN UK has made a massive difference to my life. I have some great friends and always know where to turn to if I need some help”
SWAN UK member 2012

“Can’t thank you enough for being a great voice for us all!”
Carlee Gilbert, ChILD Lung Foundation, 2011

On Rare Disease UK, an initiative of Genetic Alliance UK: “Thank you for all you are doing. I think great progress has been made and we are moving closer to securing a better experience for all people with a rare disease.” Former carer for patient with a rare disease

“I am really grateful for the support given to me by Genetic Alliance UK. On behalf of the entire cavernoma community, I know that these guidelines will be a very useful starting point for research in this area.” Ian Stuart, Cavernoma Alliance UK