policy & campaignsGenetic Alliance UK Policy is a product of the shared interests of all our member groups. Find out about our policy initiatives... |
projectsGenetic Alliance UK carries out a variety of projects focusing on issues that children, families and individuals with genetic disorders face. Find out more... |
publicationsThe Resources Centre houses a vast store of Publications to inform and support patients, their familties and anyone interested in Genetics and all related areas. View our list... |
genetic services - ukYou can find a comprehensive list of regional Genetics Centres and Services in the Resources Centre. View the list of Centres... |
Helping those with Genetic conditions
Genetic Alliance UK is the national charity of over 150 patient organisations supporting all those affected by genetic disorders.
Our aim is to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them.
latest news
Children and young people's health outcomes
The Children and Young People's Health Outcomes Forum is consulting on how to measure healthcare outcomes for children and young people in the new NHS in England. You can see our joint response with SWAN UK here
Our Mission
Our mission has three main elements:
- Supporting:
We seek to raise awareness of genetic diseases and improve the quality of services and information available to patients and families. - Campaigning:
We actively campaign on issues of policy and practice to influence governments, policy makers, industry and care providers such as the National Health Service. - Uniting:
We provide a united voice for all those affected by genetic conditions, enabling us to work together towards a common goal of making life better for patients and families at risk.
Sponsors