Welcome to Genetic Alliance UK

05.08.10

Route maps for rare genetic conditions 

A new project, funded by the Dept of Health has begun at Genetic Alliance UK. Jessica Burke, Project Manager will work with user led groups to produce a ‘tool-kit’ for developing route maps for care pathways of patients with rare genetic conditions. The project will also involve supporting eight user groups in developing their own condition-specific route maps. Members of Genetic Alliance UK will be invited to apply to take part in the project next week. Applications will be open to user groups till 22nd August. If you would like further information on the project email  

05.08.10

Super Hero Fun Run in Manchester 26th September 2010

The Do It For Charity (DIFC) Manchester 5KM Super Hero Run will take place on Sunday 26th September at Heaton Park. If you would like to take part and help raise funds for Genetic Alliance UK register please follow the link and the click on ‘DIFC 5K Super Hero Run Manchester 2010’. For more information about the event email or call 020 7704 3141.

05.08.10

New Nowgen Teachers’ TV programme on Human Genomics

Nowgen has launched a series of TV programmes about genomic research for GCSE and A-Level students and teachers as part of their ‘Schools Genomics Programme’. The innovative three-year programme, funded by the Wellcome Trust aims to narrow the gap between genomics research and classroom genetics. The programmes are now available to watch and download from the Teachers TV website.

The Royal Society of Medicine, is hosting an event on Personal Genomic Screening on 21st October 2010. More information can be found on their website, patient organisations are eligable for the Early bird AHP/Nurse/Midwife delegate rate.

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