Leading the way for people affected by genetic conditions

Latest from Genetic Alliance UK

Help develop the Welsh strategy for genomics and precision medicine

News

Help develop the Welsh strategy for genomics and precision medicine

Introducing Rosie, our new Public Affairs Assistant at Genetic Alliance UK!

Guest Blog

Introducing Rosie, our new Public Affairs Assistant at Genetic Alliance UK!

High court decision on NHS England's power to fund PrEP

News

High court decision on NHS England's power to fund PrEP

The Caldicott Review 

News

The Caldicott Review 

Our Work

We work on a variety of issues faced by families and individuals with genetic conditions. We aim to provide information, support families and influence the services needed by these patients. We also bring the patient voice into debates that matter to our community. Our work falls into different categories:  reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.

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Brexit: the impact on rare disease

Our Work

Brexit: the impact on rare disease

Models of consent for NCARDRS

Our Work

Models of consent for NCARDRS

The value of secondary use of data in Northern Ireland

Our Work

The value of secondary use of data in Northern Ireland

Proposals to display medicines pricing on packaging

Our Work

Proposals to display medicines pricing on packaging
Our members can help

Our members can help

We are an alliance of over 180 patient organisations. We work with our members on campaigns, consultations and engagement projects to ensure our work accurately reflects the needs and concerns of patients and families affected by all types of genetic conditions. 

Our mission is to ensure that high quality services, information and support are provided to all. We actively support research and innovation across the field of genetic medicine.

All our members

Join our alliance of 180+ patient charities

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